Gaby is joined by Jordan Adams - one of the FTD Brothers - who tells us all about his journey with dementia and the importance of finding the joy in things every day.
Jordan and his brother are on a mission to cure dementia before it takes their own lives. They have raised an amazing amount of money so far - and continue to do so, through running!
You can find out more about what they're doing on their instagram - and - donate to via their go fund me page.
And here's a little more about Jordan and his family's journey:
"After our mum’s passing, our sister Kennedy felt a burning need to know whether she would inherit the same illness. Through family connections in Ireland, she arranged an appointment at the Dublin Neurological Institute with Professor Tim Lynch, who had researched familial FTD within our family.
Kennedy underwent research studies and genetic counselling before receiving her test result in 2018. She had inherited the normal copy of the gene from our dad — meaning she would not develop FTD.
For the first time in years, we had good news.
Kennedy was able to move forward, start a family, and live without the shadow we had all been carrying. Her bravery gave Jordan the courage to follow the same path. In September 2018, Jordan received his result: a carrier of the faulty MAPT gene, meaning he will develop the same form of dementia as our mum.
Jordan describes that diagnosis as a 'licence to live'. Knowing what lies ahead has sharpened every decision since — including the decision to ensure this disease is not passed on further. Tragically, earlier this year, Jordan and his partner Agnès learned during a pregnancy that their child had also inherited the faulty gene, and they were unable to continue. Their journey to start a family continues."
UK