Neuroshambles

• Grappling with personal hygiene | Rebecca Huseyin

  Mark talks to the tremendous Rebecca Huseyin, who is a blogger, trainer, neurodiversity advocate and Mum of a neurodifferent son (13, diagnosed autistic with a PDA profile and suspected ADHD). They swap tales of the ludicrous lengths they go to when trying to navigate personal hygiene tasks, such as cleaning hands, wiping faces, brushing teeth, having baths, cutting fingernails and wiping bums. There are some hilarious anecdotes of the lengths to which Mark and Rebecca go to encourage their kids to engage in hygiene tasks - from fake drowning them in the bath, cleaning their teeth like a Victorian ghost and introducing the concept of "special dry". LINKS TO STUFF WE MENTION IN THIS EPISODE: The Lighter Side of PDA Facebook Group - https://www.facebook.com/groups/LighterPDA/ Rebecca Huseyin blog (A Boy Less Ordinary) - https://aboylessordinary.com/ SENDIASS - (Google for your local county SENDIASS details) PDA Society - https://www.pdasociety.org.uk/ Proprioception and Interoception: https://www.autismspeaks.org/sensory-issues Oranurse unflavoured toothpaste - https://oranurse.co.uk/unflavoured-toothpaste/ Little teeth toothpaste - https://www.aquafresh.com/en-gb/our-products/kids-oral-care/little-teeth-toothpaste/ Big teeth toothpaste - https://www.aquafresh.com/en-gb/our-products/kids-oral-care/big-teeth-toothpaste/ The Prism Cat - https://linktr.ee/KyraChambers   Tesco Mobile Sensory Box - https://bettersociety.net/tesco-mobile-sensory-box.php Insanity Arcade, Poole - https://www.insanityarcade.com/home   CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

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  1:15:01
• Do our kids feel empathy? | Heidi Mavir

  Mark welcomes back the phenomenal Heidi Mavir, who is an  author, a neurodivergent advocate, activist, public speaker and Mum of a neurodifferent son (20, diagnosed autistic with a tic disorder, as well as suspected dyslexia and  Ehlers Danlos Syndrome). They pick up on a topic they very briefly touched on in the previous episode they recorded, which is whether there's any truth to the commonly-held belief that autistics don't feel empathy (spoiler alert - that view is abject nonsense). They dissect the very concept of empathy to try and understand why it's viewed as so important to neurotypicals, what "the double empathy problem" is and why our kids' way of displaying and responding to empathy is so varied. This is a genuinely insightful episode that gives a lot of food for thought when considering whether our own kids are able to feel empathy.   LINKS TO STUFF WE MENTION IN THIS EPISODE: Heidi Mavir EOTAS Matters website - https://www.heidimavir.com/ "Your Child Is Not Broken" by Heidi Mavir - https://amzn.eu/d/8di4y0X "Why Can't I Just Enjoy Things?" by Pierre Novellie - https://amzn.eu/d/fd51tDR "How To Win Friends and Influence People" - https://amzn.eu/d/fd51tDR The Double Empathy Problem - https://reframingautism.org.au/miltons-double-empathy-problem-a-summary-for-non-academics/ "I Didn't See You There" by Charlotte Gail - https://amzn.to/3PUk4n1 Sesame Street Introduce Autistic Character - https://youtu.be/dKCdV20zLMs Muppet Christmas Carol - https://youtu.be/JXaVI60BFJM Heidi Mavir on TikTok - https://www.tiktok.com/@heidimavir   CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

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  1:29:08
• Medicating Our Children | Danielle Jata-Hall

  In response to several requests from listeners, this episode is all about the complexities of giving medication to our neurodivergent kids. Mark speaks to the tremendous Danielle Jata-Hall, who is an author, award-winning blogger and a disability campaigner. She has three children (13, 11 and 8 - all diagnosed Autistic with a PDA profile, as well as a blend of ADHD, Anxiety and potential bipolar disorder). Mark and Danielle discuss the medication journeys they've been on with their own kids, from overcoming their initial misgivings and dealing with the judgement of others, to the administrative nightmare of trying to get medication prescribed by medical professionals. They compare different prescription pathways and share their experiences of the difficult process of titration - not to mention the rigamarole of actually getting their kids to take the medication we've fought so hard to get for them.   LINKS TO STUFF WE MENTION IN THIS EPISODE: "The Journey Into S.E.N.D Fatherhood" book - https://amzn.eu/d/0qwN0il Danielle Jata-Hall blog - https://pdaparenting.com/ Newbold Hope -  https://www.newboldhope.com/ FII (Fabricated or Induced Illness) - https://www.nhs.uk/mental-health/conditions/fabricated-or-induced-illness/overview/ "The Parent's Guide to ADHD Medicines" book - https://amzn.eu/d/i2e73JM Shared Care - https://www.england.nhs.uk/medicines-2/regional-medicines-optimisation-committees-advice/shared-care-protocols/ "I'm Not Upside Down, I'm Downside Up" book - https://amzn.eu/d/avsMxy2 "Black Rainbow" book - https://amzn.eu/d/he1Nd8K "Steph's Two Girls" blog with tips on getting your child to take medication - https://www.stephstwogirls.co.uk/2020/01/top-tips-when-your-child-wont-take.html "A boy less ordinary" blog - https://aboylessordinary.com/   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

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  1:19:51
• How far have we come? | Stephanie (from over the road)

  What was it like to raise an autistic child 30 years ago? Mark has a fascinating chat with Stephanie - his wonderful neighbour from over the road, who has a 31 year old son (diagnosed autistic with moderate learning difficulties, OCD and anxiety).  They discuss how parents of autistic children were able to navigate the process of understanding how best to raise their kids, without access to the internet, social media or the breadth of information we have available now?  This is an enlightening and surprisingly uplifting episode, which shines a light on just how far society has come in a relatively short space of time, when it comes to understanding, supporting and championing our neurodivergent kids. LINKS TO STUFF WE MENTION IN THIS EPISODE: Disneyland, Paris - https://www.disneylandparis.com/en-gb/ Echolalia - https://en.wikipedia.org/wiki/Echolalia The Very Hungry Caterpillar, Eric Carle - https://amzn.eu/d/boDv6wN Rain Man - https://en.wikipedia.org/wiki/Rain_Man The Essential Different, Simon Baron Cohen - https://amzn.eu/d/3Y5xgWv Gentle Parenting - https://www.psychologytoday.com/gb/blog/on-babies/202405/gentle-parenting-doesnt-mean-permissive-parenting Leonardo Da Vinci - https://www.independent.co.uk/news/health/leonardo-da-vinci-adhd-health-mona-lisa-a8927641.html Social Stories - https://www.autism.org.uk/advice-and-guidance/topics/communication/communication-tools/social-stories-and-comic-strip-coversations Supported Employment - https://www.base-uk.org/about/members/brighton-hove-city-council Fare Share - https://fareshare.org.uk/ Oxfam - https://jobs.oxfam.org.uk/jobs/home/ Leonardslee Gardens - www.leonardsleegardens.co.uk/   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

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  1:24:57
• Coping with transport | "Belle"

  Mark welcomes back former guest "Belle", as they discuss the perils of transport. "Belle" has two neurodivergent children - a 9-year old girl (diagnosed autistic with sensory processing disorder and a PDA profile), and a 7-year old boy (diagnosed autistic with Tourette Syndrome and suspected ADHD). Alongside Mark's three neurodivergent kids (with a giddy blend of autism, ADHD, anxiety and PDA), they have a trove of transport-related horror stories to tell. As well as discussing tales of travelling on buses, planes, trains, boats and cars, there are also more Neurodiversity Champions, Tiny Epic Wins and What The Flip moments, as well a particularly insightful proposal to create a demand-avoidant sat nav. LINKS TO STUFF WE MENTION IN THIS EPISODE: Gatwick Airport Special Assistance - https://www.gatwickairport.com/passenger-guides/special-assistance.html Ferry cabins (DFDS) - https://www.dfds.com/en-gb/passenger-ferries/onboard/newhaven-dieppe/sleeping Jen Marillat, Dramatherapist - https://jenmarillat.com/ Health and Care Professions Council - https://www.hcpc-uk.org/ The British Association of Dramatherapists - https://www.badth.org.uk/  EMDR Therapy - https://www.bacp.co.uk/about-therapy/types-of-therapy/eye-movement-desensitisation-and-reprocessing-emdr Riding For the Disabled Association (RDA) - https://rda.org.uk/ Aspens, East Sussex - https://www.aspens.org.uk/   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

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  1:13:14

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