Neuroshambles

Mark chats to the magnificent Lisa Lloyd about the judgement they regularly receive from outsiders as parents of neurodivergent kids. Lisa has two children - an 11-year old boy (diagnosed autistic) and a 7-year old girl (diagnosed autistic, with a PDA profile) and, as a prominent content creator on social media (@asd_with_a_g_and_t), she is no stranger to being judged by people who don't have a neurodivergent child, much less a clue about how to raise one. Mark and Lisa swap tales about comments they receive from people judging their children ("He's not autistic, he's just naughty"), judging their parenting ("He wouldn't act like that if he was my son") and judging the entire concept of neurodivergency ("It's just a label"). They discuss the misconceptions that cause people to act this way, as well as the appropriate responses you can give them in return. This is a great one to listen to if you've ever been told that "He doesn't look autistic" or "Everyone's a bit on the spectrum".   LINKS TO STUFF WE MENTION IN THIS EPISODE: Raising the Sen-Betweeners, Lisa Lloyd - https://amzn.eu/d/4hm6Sb0 SEND Reform England - https://www.sendreformengland.com/ Lisa Lloyd Instagram - https://www.instagram.com/asd_with_a_g_and_t/ Lisa Lloyd TikTok - https://www.tiktok.com/@asd.with.a.g.and.t Lisa Lloyd Facebook - https://www.facebook.com/ASDwithGandT     CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok:https: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

Mark discusses the innate human desire to "keep up with the Joneses" with returning guest Samuel Wilson, who is an author and parent of two children: an 8-year old daughter (on the autism pathway, with Cerebral Palsy, Cerebral Visual Impairment and Sensory Processing Disorder) and a 5-year old son (suspected neurotypical). They discuss how unhelpful that can be in the early days of your diagnosis journey and how liberating it is when you finally let go of the expectations of being "normal" and embrace your family in all of their neuroshambolic glory. LINKS TO STUFF WE MENTION IN THIS EPISODE: Simpsons clip - https://www.youtube.com/watch?v=784seqWxsMk&t=469s Dad La Soul - https://www.dadlasoul.com/ BBC Woman’s Hour - https://www.bbc.co.uk/sounds/play/m0022ss7 India Croc replacement saga - https://www.instagram.com/p/C9hLMewpBH6/ "Lend a Hand", Samuel Wilson's book - www.littlestepspublishing.co.uk/books/lend-a-hand   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

A potentially controversial episode, this one, where Mark chats to an old friend, Kate Ebbutt (Mum to 11 year-old neurotypical and 9-year old diagnosed ADHD/suspected autistic humans). They talk candidly about something they've both found themselves worrying about in their darker moments - am I raising an arsehole? They dissect the behaviours that qualify someone as being "an arsehole" and discuss to what extent they can be fairly applied to our neurodivergent kids. They also discuss to what extent the gentle parenting approach could be contributing to this behaviour, as well as recounting experiences of times where they've had to explain their parenting choices to neurotypicals who struggle to understand their approach. Please note, if you are offended by the word arsehole, it is sprinkled liberally throughout the episode, so this one might not be for you.   LINKS TO STUFF WE MENTION IN THIS EPISODE: "The Explosive Child" book - https://drrossgreene.com/the-explosive-child.htm Gentle Parenting - https://www.parents.com/parenting/better-parenting/style/what-is-gentle-parenting/ National Trust - https://www.nationaltrust.org.uk/ RAM (Random Access Memory) - https://www.ign.com/articles/what-is-ram Sheffield Queer Parents - https://sites.google.com/view/sheffield-queer-parents Angling 4 Education - https://www.angling4education.com/     CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

Mark chats to the inspirational Kieran Rose. As well as being autistic/ADHD himself, Kieran has three autistic/ADHD children (11, 14 and 15) as well as an autistic wife. Kieran is an author, academic, trainer, consultant and all round font of knowledge on autism, so this episode contains some fascinating insights into the different communication styles between neurodivergents and neurotypicals when having a conversation. As well as topics such as situational mutism, hyperverbalism and monotropism, Mark and Kieran swap tales about the fact they're never able to finish a conversation without being interrupted and discuss the perils of group conversation and their very different takes on the ridiculous neurotypical habit of engaging in small talk.   LINKS TO STUFF WE MENTION IN THIS EPISODE: Neurodive Podcast - https://soundcloud.com/neurodivepod/kieranrose Kieran's website - https://theautisticadvocate.com/ Maori word for autism - https://www.bbc.co.uk/news/blogs-news-from-elsewhere-40493398   KIERAN'S RECOMMENDATIONS FOR FURTHER READING: A short (and very inexhaustive) list of Autistic advocates and allies no longer with us, who have made a phenomenally constructive difference to the narratives around Autistic and Neurodivergent people, but who never get the recognition of lauded non-Autistic people:   Jim Sinclair Don't mourn for us - Jim Sinclair wrote one of the pivotal texts in the reframing of Autistic experience (opens as a PDF): https://www.google.com/url?sa=t&source=web&rct=j&opi=89978449&url=https://philosophy.ucsc.edu/SinclairDontMournForUs.pdf&ved=2ahUKEwik86zq-smIAxWCWUEAHQ2NH5UQFnoECCQQAQ&usg=AOvVaw3WfDEINrbr2olYTgiO6ZKl A book about Jim: https://amzn.eu/d/3qalj4l   Donna Williams Conceptualised a model of advocacy based on an inside-out approach - that observation based on your own or a normative experience can only take you so far. https://en.m.wikipedia.org/wiki/Donna_Williams She produced a massive number of books: https://uk.jkp.com/collections/author-donna-williams-pid-199891   Mel Baggs: https://en.m.wikipedia.org/wiki/Mel_Baggs An old (quality is indicative of its age, so please bear with it) video on two parts that off a deep challenge to normative assumptions around communication and experience: https://youtu.be/JnylM1hI2jc?si=IaPhwkiYn1vRmmlp   Dinah Murray https://en.m.wikipedia.org/wiki/Dinah_Murray Co-creator of the theory of monotropism: https://journals.sagepub.com/doi/abs/10.1177/1362361305051398 A basic introduction: https://youtu.be/qUFDAevkd3E?si=SMiSDEoiNcDtV2eg   Steve Silberman https://en.m.wikipedia.org/wiki/Steve_Silberman The author of Neurotribes, a game changing book that brought a model of different, not less into the mainstream: https://amzn.eu/d/clw0AD8     CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: [email protected] FOLLOW US Instagram: www.instagram.com/neuroshambles Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/