The Rare Life

Parenting a medically complex child without a partner or co-parent can bring a new level of difficulty.
From managing the financial realities of a solo parent household to the emotional weight of making all the decisions on your own to the uncertainty of who would care for your child if something happens to you, we’re covering what makes solo medical parenting a little different from a partnered parenting experience. (And why it’s unfortunately still relatable to some parents who technically have partners too.)
A huge thank you to our sponsor for this summer season, Real Food Blends!
Real Food Blends are the only 100% real food meals thatare ready-to-feed for people with feeding tubes. Offering 8 different meals and 1 snack for adults & kids, it's the closest thing to homemade blenderized tube feeding. Learn more at realfoodblends.com!
Links:
Fill out our contact form to join upcoming discussion groups!
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Listen to Ep 156: Should I Get a Divorce?
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.

As parents taking care of disabled and medically complex kids, we could probably use a little more help and support than the average person... But that doesn’t make it easy to ask for it.
From guilt to societal pressure to simply not having anyone you can trust for support, we’re digging into why help is just so hard to ask for.
A huge thank you to our sponsor for this summer season, Real Food Blends!
Real Food Blends are the only 100% real food meals thatare ready-to-feed for people with feeding tubes. Offering 8 different meals and 1 snack for adults & kids, it's the closest thing to homemade blenderized tube feeding. Learn more at realfoodblends.com!
Links:
Fillout our contact form to join upcoming discussion groups!
Join The Rare Life newsletter and never miss an update!
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.

As our disabled and medically complex children grow and mature, caring for and navigating their sexual health can be a tricky topic.
From appropriately navigating sexual activity, consent, basic hygiene and even more complicated topics like birth control and how puberty can bring about new health complications, we’re breaking down a ton of different sexual health aspects in this episode.
A huge thank you to our sponsor for this summer season, Real Food Blends!
Real Food Blends are the only 100% real food meals thatare ready-to-feed for people with feeding tubes. Offering 8 different meals and1 snack for adults & kids, it's the closest thing to homemade blenderized tube feeding. Learn more at realfoodblends.com!
Links:
Fill out our contact form to join upcoming discussion groups!
Join The Rare Life newsletter and never miss an update!
Follow Amanda on Instagram @amanda.griffith.atkins!
Follow Jill on Instagram @jill.arneson!
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.

Clinical trials are so important. They’re how new therapies and treatments and cures are developed for diseases, and how we update our medical knowledge. At the same time, they aren’t without risk for our kids and our families.
So, how do you decide whether it’s worth it? We’re breaking down that question with pros, cons, and personal experiences.
A huge thank you to our sponsor for this summer season, Real Food Blends!
Real Food Blends are the only 100% real food meals thatare ready-to-feed for people with feeding tubes. Offering 8 different meals and 1 snack for adults & kids, it's the closest thing to homemade blenderized tube feeding. Learn more at realfoodblends.com!
Links:
Fill out our contact form to join upcoming discussion groups!
Join The Rare Life newsletter and never miss an update!
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.

Nature can be healing. But when you have a disabled or medically complex child, getting outside can also be complicated.
Today, we’re talking about the ways nature grounds us, the grief that can come up when it is not accessible to our kids, and the small, beautiful ways our families still find their own version of outside.
A huge thank you to our sponsor for this summer season, Real Food Blends!
Real Food Blends are the only 100% real food meals that are ready-to-feed for people with feeding tubes. Offering 8 different meals and 1 snack for adults & kids, it's the closest thing to homemade blenderized tube feeding. Learn more at realfoodblends.com!
Links:
Fill out our contact form to join upcoming discussion groups!
Join The Rare Life newsletter and never miss an update!
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.