PodcastsBusinessOn the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

Jonathan Hirons and Rob Edwards
On the tip of my tongue - talking about Aphasia
Latest episode

31 episodes

  • On the tip of my tongue - talking about Aphasia

    Finding Words: AI and Aphasia

    09/02/2026 | 18 mins.
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    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia.

    00:00 Introduction to the Podcast
    00:21 Understanding Aphasia and AI's Potential
    01:03 Dr. Abi Roper on AI and Aphasia
    01:42 AI's Role in Simplifying Text
    02:39 Speech Recognition Challenges and Advances
    04:48 Jez Hodgkinson's AI App for Word Finding
    07:26 Chatbots and Human Conversation
    10:41 AI's Limitations and Hallucinations
    12:33 Visual Support and Multimodal Communication
    14:09 Robert Baldock Personalized Synthetic Voice
    17:03 Co-Designing AI Tools with People with Aphasia
    Support the show
    Support the show: Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm
    Linkedin: https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Bridging the Gap: AI and Aphasia with Dr. Abi Roper

    29/12/2025 | 31 mins.
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    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communication and daily tasks. She also addresses the limitations of AI, such as its inability to fully replicate human conversational skills and the importance of verifying AI-generated information. The episode highlights ongoing research and projects aimed at harnessing AI in therapy, underscoring AI's potential to support but not replace human therapists.

    00:00 Introduction to AI and Aphasia
    01:18 Meet Dr. Abby Roper
    01:43 AI's Role in Assisting Aphasia
    03:13 Speech Recognition and Practical Uses
    05:25 Challenges and Limitations of AI
    27:07 The Future of AI in Therapy
    30:35 Conclusion and Resources
    Support the show
    Support the show: Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm
    Linkedin: https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Understanding Aphasia: Personal Stories and Community Support

    09/12/2025 | 26 mins.
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    In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions.

    00:00 Introduction to the Podcast
    00:38 Understanding Aphasia
    01:16 Chris's Journey with Aphasia
    01:42 Lisa's Role and Contributions
    02:06 Chris's Aphasia Groups
    04:58 Lisa's Connection to Say Aphasia
    06:56 Challenges and Solutions in Aphasia Care
    10:36 Group Activities and Social Impact
    14:52 Transport Issues and Community Support
    22:06 Raising Awareness and Future Goals
    24:49 Conclusion and Resource
    https://www.sayaphasia.org/worcester
    Support the show
    Support the show: Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm
    Linkedin: https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson

    22/10/2025 | 27 mins.
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    AI and Aphasia: Overcoming Communication Barriers

    In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years. He introduces an AI-powered app he developed to assist Aphasia sufferers in recalling words more easily. The conversation highlights the potential of AI to support individuals with communication difficulties while noting the broader implications of AI technology in society.

    00:00 Introduction and Guest Background
    00:15 Overcoming Aphasia: Personal Journey
    01:28 Community Involvement and Support Groups
    03:17 Introduction to AI and Early Experiences
    05:14 Developing an AI App for Aphasia
    15:41 Practical Uses of AI in Daily Life
    22:27 Challenges and Future of AI
    25:17 Conclusion and Final Thoughts
    Say Aphasia Group Winchester and Southampton 
    https://www.sayaphasia.org/winchester

    Support the show
    Support the show: Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm
    Linkedin: https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"

    15/10/2025 | 22 mins.
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    Transformative Power of Music Therapy with Elizabeth Nightingale
    In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with community outreach and online learning. The conversation also covers the specifics of music therapy for Aphasia patients, highlighting the cognitive and emotional benefits, the development of new neural pathways, and the creation of supportive communities. The episode emphasizes the nationwide accessibility of these services through online platforms, making therapeutic music interventions available even in remote and under-served areas.

    00:00 Introduction to the Podcast
    00:54 Meet the Hosts and the Topic of Aphasia
    01:49 Welcoming Elizabeth Nightingale
    02:23 Overview of Chiltern Music Therapy
    03:57 Impact of Music Therapy on Various Conditions
    05:22 The Science Behind Music Therapy
    07:23 Online Aphasia Music Therapy Groups
    09:13 Access and Participation Details
    18:23 Promoting the Online Groups
    21:24 Concluding Remarks and Resources
    For more info about Chiltern and Aphasia
    https://www.chilternmusictherapy.co.uk/stories/use-your-voice-aphasia

    Support the show
    Support the show: Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm
    Linkedin: https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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About On the tip of my tongue - talking about Aphasia

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia: Jonathan's Experience with Aphasia 1. Initial Incident: In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help. 2. Medical Emergency: He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia. 3. Impact on Daily Life: - Jonathan struggled with basic tasks such as speaking, reading, and writing. - He had memory issues, recalling only his postcode but not his full address or other personal information. - He faced challenges in understanding spoken language but could still sign his name. 4. Support from Family: His wife, Ann, played a crucial role in his recovery: - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing. - This early intervention was vital for his rehabilitation. 5. Progress Through Therapy: With the help of speech therapy, Jonathan made significant improvements: - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired. 6. Advocacy and Awareness: - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges. - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation. Understanding Aphasia Aphasia is a language disorder that affects communication abilities, including: - Speaking: Difficulty in forming words or sentences. - Understanding: Challenges in comprehending spoken or written language. - Reading and Writing: Problems with reading text or writing coherently. Key Takeaways - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life. - Early intervention and support are crucial for recovery. - Awareness and education about aphasia can help reduce stigma and improve support for those affected. Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey. Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited. For permissions or inquiries, please contact [email protected]
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