PodcastsBusinessOn the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

Jonathan Hirons and Rob Edwards
On the tip of my tongue - talking about Aphasia
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33 episodes

  • On the tip of my tongue - talking about Aphasia

    Life Beyond Aphasia: Supporting Care Partners and Building a Movement

    26/03/2026 | 27 mins.
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    Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partner roadmap with weekly training and live support, plus a bootcamp and membership, addressing communication strategies and practical life needs like legal and emergency planning. They discuss collaboration via new websites and resources, and share links to the film and Genevieve’s podcast and sites.

    00:00 Aphasia Needs Action
    00:12 Podcast Welcome and Aphasia Basics
    01:09 Care Partners Matter
    02:05 US vs UK Support Systems
    04:20 Groups and Ongoing Resources
    06:46 Genevieve Care Partner Roadmap
    10:24 How the 12 Month Program Works
    11:42 Community Fights Isolation
    13:05 Scaling Up and The Numbers
    14:16 Life Logistics and Caregiver Tools
    17:50 Building a Global Movement
    19:07 Aphasia Energy and The Gas Tank
    20:28 New Website and Collaboration
    21:52 Genevieve Podcast and Bootcamp
    23:13 Wrap Up Links and Resources
    24:44 Final Credits and Sign Off
    Genevieve's websites:
    https://www.dolifespeechpathology.com
    https://www.lifeaphasiaacademy.co

    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Hanka Mayhew: The Multilingual Advocate for Aphasia Awareness"

    06/03/2026 | 12 mins.
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    Hanka Mayhew: A Polyglot’s Journey Through Aphasia and Advocacy

    Hanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair relearning how to live. On the Tip of My Tongue podcast, she explains that English and German are easiest, Spanish is slowly returning with little practice, and she can understand some French and Russian but cannot speak them; she retained reading ability but reads more slowly. In February 2024 she joined the Aphasia International Association and became a Say Aphasia ambassador, traveling to assemblies and conferences across Europe and giving talks with therapist support to raise awareness and build an international aphasia community.

    00:00 Life in Spain
    00:22 Stroke and Aphasia
    00:58 Recovery Journey
    01:11 Languages After Stroke
    03:09 Reading and Fatigue
    03:57 Joining AIA and Speaking
    05:20 Aphasia Day in Italy
    05:53 Future Plans and Travel
    07:36 AIA Community and Outreach
    11:05 Final Reflections
    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Finding Words: AI and Aphasia

    09/02/2026 | 18 mins.
    Send us Fan Mail

    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia.

    00:00 Introduction to the Podcast
    00:21 Understanding Aphasia and AI's Potential
    01:03 Dr. Abi Roper on AI and Aphasia
    01:42 AI's Role in Simplifying Text
    02:39 Speech Recognition Challenges and Advances
    04:48 Jez Hodgkinson's AI App for Word Finding
    07:26 Chatbots and Human Conversation
    10:41 AI's Limitations and Hallucinations
    12:33 Visual Support and Multimodal Communication
    14:09 Robert Baldock Personalized Synthetic Voice
    17:03 Co-Designing AI Tools with People with Aphasia
    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Bridging the Gap: AI and Aphasia with Dr. Abi Roper

    29/12/2025 | 31 mins.
    Send us Fan Mail
    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communication and daily tasks. She also addresses the limitations of AI, such as its inability to fully replicate human conversational skills and the importance of verifying AI-generated information. The episode highlights ongoing research and projects aimed at harnessing AI in therapy, underscoring AI's potential to support but not replace human therapists.

    00:00 Introduction to AI and Aphasia
    01:18 Meet Dr. Abby Roper
    01:43 AI's Role in Assisting Aphasia
    03:13 Speech Recognition and Practical Uses
    05:25 Challenges and Limitations of AI
    27:07 The Future of AI in Therapy
    30:35 Conclusion and Resources
    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Understanding Aphasia: Personal Stories and Community Support

    09/12/2025 | 26 mins.
    Send us Fan Mail
    In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions.

    00:00 Introduction to the Podcast
    00:38 Understanding Aphasia
    01:16 Chris's Journey with Aphasia
    01:42 Lisa's Role and Contributions
    02:06 Chris's Aphasia Groups
    04:58 Lisa's Connection to Say Aphasia
    06:56 Challenges and Solutions in Aphasia Care
    10:36 Group Activities and Social Impact
    14:52 Transport Issues and Community Support
    22:06 Raising Awareness and Future Goals
    24:49 Conclusion and Resource
    https://www.sayaphasia.org/worcester
    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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About On the tip of my tongue - talking about Aphasia

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia: Jonathan's Experience with Aphasia 1. Initial Incident: In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help. 2. Medical Emergency: He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia. 3. Impact on Daily Life: - Jonathan struggled with basic tasks such as speaking, reading, and writing. - He had memory issues, recalling only his postcode but not his full address or other personal information. - He faced challenges in understanding spoken language but could still sign his name. 4. Support from Family: His wife, Ann, played a crucial role in his recovery: - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing. - This early intervention was vital for his rehabilitation. 5. Progress Through Therapy: With the help of speech therapy, Jonathan made significant improvements: - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired. 6. Advocacy and Awareness: - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges. - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation. Understanding Aphasia Aphasia is a language disorder that affects communication abilities, including: - Speaking: Difficulty in forming words or sentences. - Understanding: Challenges in comprehending spoken or written language. - Reading and Writing: Problems with reading text or writing coherently. Key Takeaways - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life. - Early intervention and support are crucial for recovery. - Awareness and education about aphasia can help reduce stigma and improve support for those affected. Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey. Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited. For permissions or inquiries, please contact [email protected]
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