PodcastsBusinessOn the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

Jonathan Hirons and Rob Edwards
On the tip of my tongue - talking about Aphasia
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35 episodes

  • On the tip of my tongue - talking about Aphasia

    Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future

    08/06/2026 | 26 mins.
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    Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future

    During Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting speaking, understanding, reading, and writing, commonly after stroke or brain injury—with more than 350,000 people living with it in the UK. Guest Ann Hirons shares a carer’s perspective, discussing how aphasia is treated as a secondary condition, its “quiet crisis” impact on identity and family life, and the need to avoid carer burnout by creating therapy-free zones. The episode debunks the myth that impaired speech means impaired intellect, offers practical tips for everyday interactions (patience, simple questions, don’t finish sentences, use writing/pointing), and explores living with slowed communication and fatigue. It addresses the post-NHS-therapy “cliff edge,” benefits of peer groups, realistic recovery through practice and small steps, and roles for AI tools and creative outlets like film, art, and music supported by neuroplasticity.

    00:00 Aphasia Awareness Intro
    01:49 Why Aphasia Is Overlooked
    03:53 Carer Burnout Balance
    06:11 Everyday Anxiety And Support
    09:20 Myths About Intelligence
    11:36 Simple Communication Tips
    13:41 Invisible Prison Advice
    16:16 Aphasia Fatigue Reality
    17:47 After Therapy Ends
    19:08 Recovery Expectations
    21:45 AI And Future Tools
    23:10 Creativity And Neuroplasticity
    25:53 Closing And Resources
    https://www.sayaphasia.org

    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Speak Up for Aphasia: A Global Awareness Campaign Update

    22/05/2026 | 14 mins.
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    Speak Up for Aphasia: A Global Awareness Campaign Update

    Guest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to raise the remainder by end of June 2026, with a global launch targeted for Aphasia Awareness Month in June 2027. Partners include the Collaboration of Aphasia Trialists for native-speaker translations, champion networks, and free hosting of assets. The message emphasizes “recognize, respond and respect” and that aphasia does not affect intelligence; listeners are asked to donate, fundraise, provide support letters, and follow “Speak Up for Aphasia” on Facebook.

    00:00 Welcome and Hosts
    00:18 What Is Aphasia
    01:24 Campaign Mission and Funding Goal
    05:16 Global Partners and Translations
    06:42 Public Message Recognize Respond Respect
    09:03 Timeline to June 2027 Launch
    11:09 How You Can Support
    13:02 Wrap Up and Resources
    Facebook:  https://www.facebook.com/profile.php?id=61572140991752
    Donate to the International Aphasia Awareness campaign:
    https://justgiving.com/campaign/qarc-uq-aphasia-awareness
    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Life Beyond Aphasia: Supporting Care Partners and Building a Movement

    26/03/2026 | 27 mins.
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    Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partner roadmap with weekly training and live support, plus a bootcamp and membership, addressing communication strategies and practical life needs like legal and emergency planning. They discuss collaboration via new websites and resources, and share links to the film and Genevieve’s podcast and sites.

    00:00 Aphasia Needs Action
    00:12 Podcast Welcome and Aphasia Basics
    01:09 Care Partners Matter
    02:05 US vs UK Support Systems
    04:20 Groups and Ongoing Resources
    06:46 Genevieve Care Partner Roadmap
    10:24 How the 12 Month Program Works
    11:42 Community Fights Isolation
    13:05 Scaling Up and The Numbers
    14:16 Life Logistics and Caregiver Tools
    17:50 Building a Global Movement
    19:07 Aphasia Energy and The Gas Tank
    20:28 New Website and Collaboration
    21:52 Genevieve Podcast and Bootcamp
    23:13 Wrap Up Links and Resources
    24:44 Final Credits and Sign Off
    Genevieve's websites:
    https://www.dolifespeechpathology.com
    https://www.lifeaphasiaacademy.co

    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Hanka Mayhew: The Multilingual Advocate for Aphasia Awareness"

    06/03/2026 | 12 mins.
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    Hanka Mayhew: A Polyglot’s Journey Through Aphasia and Advocacy

    Hanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair relearning how to live. On the Tip of My Tongue podcast, she explains that English and German are easiest, Spanish is slowly returning with little practice, and she can understand some French and Russian but cannot speak them; she retained reading ability but reads more slowly. In February 2024 she joined the Aphasia International Association and became a Say Aphasia ambassador, traveling to assemblies and conferences across Europe and giving talks with therapist support to raise awareness and build an international aphasia community.

    00:00 Life in Spain
    00:22 Stroke and Aphasia
    00:58 Recovery Journey
    01:11 Languages After Stroke
    03:09 Reading and Fatigue
    03:57 Joining AIA and Speaking
    05:20 Aphasia Day in Italy
    05:53 Future Plans and Travel
    07:36 AIA Community and Outreach
    11:05 Final Reflections
    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
  • On the tip of my tongue - talking about Aphasia

    Finding Words: AI and Aphasia

    09/02/2026 | 18 mins.
    Send us Fan Mail

    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia.

    00:00 Introduction to the Podcast
    00:21 Understanding Aphasia and AI's Potential
    01:03 Dr. Abi Roper on AI and Aphasia
    01:42 AI's Role in Simplifying Text
    02:39 Speech Recognition Challenges and Advances
    04:48 Jez Hodgkinson's AI App for Word Finding
    07:26 Chatbots and Human Conversation
    10:41 AI's Limitations and Hallucinations
    12:33 Visual Support and Multimodal Communication
    14:09 Robert Baldock Personalized Synthetic Voice
    17:03 Co-Designing AI Tools with People with Aphasia
    Support the show
    Support the show:  Donate Now
    This podcast is funded by https://www.bas.org.uk

    To watch Jonathan’s film:  https://tipofmytonguefilm.com

    YouTube:    https://www.youtube.com/@tipofmytonguefilm
    Linkedin:    https://www.linkedin.com/in/jonathanhirons/
    Instagram: https://www.instagram.com/tipofmytonguepodcast/
    X:                http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org
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About On the tip of my tongue - talking about Aphasia
Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia: Jonathan's Experience with Aphasia 1. Initial Incident: In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help. 2. Medical Emergency: He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia. 3. Impact on Daily Life: - Jonathan struggled with basic tasks such as speaking, reading, and writing. - He had memory issues, recalling only his postcode but not his full address or other personal information. - He faced challenges in understanding spoken language but could still sign his name. 4. Support from Family: His wife, Ann, played a crucial role in his recovery: - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing. - This early intervention was vital for his rehabilitation. 5. Progress Through Therapy: With the help of speech therapy, Jonathan made significant improvements: - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired. 6. Advocacy and Awareness: - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges. - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation. Understanding Aphasia Aphasia is a language disorder that affects communication abilities, including: - Speaking: Difficulty in forming words or sentences. - Understanding: Challenges in comprehending spoken or written language. - Reading and Writing: Problems with reading text or writing coherently. Key Takeaways - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life. - Early intervention and support are crucial for recovery. - Awareness and education about aphasia can help reduce stigma and improve support for those affected. Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey. Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited. For permissions or inquiries, please contact hello@buffalolounge.co.uk
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