Episode 8 – Sharing experiences of several family members with the same muscle wasting condition
In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another.Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’s Stories Officer.
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Episode 7 - A lively discussion on receiving a diagnosis for a muscle wasting condition and available support
Our latest episode of Muscles Matter focuses on the point of receiving a diagnosis for a muscle wasting condition and the support made available from that point onwards. Our guests Charlotte Hardwick and Stewart Ross, both living with a muscle wasting condition, share their experiences and engage in a lively discussion with Kerry Spink our podcast host whose twin sons live with FSHD. Drawing on their own lived experiences, all three discuss how diagnosis and support currently looks, what an ideal diagnosis and support scenario might be, and the support they’ve found most useful.
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Episode 6 – Inspired to make a difference
In our latest episode of Muscles Matter we have two guests, Carmela Chillery-Watson MBE and Chris Stennett, who have both been inspired to do some incredible activities to raise awareness about muscle wasting conditions. They share their highlights, what’s up next for them, where their inspiration comes from, and tips for anyone wanting to start up a fundraising/awareness activity – however big or small. They are joined by host Martin Hywood, who himself has lots of experience running fundraising events and activities.
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Episode 5 – Discussing accessible travel when holidaying
In this episode of Muscles Matter we discuss all things accessible travel when holidaying. Joining us are David, who lives with miyoshi myopathy and is on a mission to visit every country in the world, and Ross, who has SMA and is a regular long haul flight goer. They discuss the challenges they face when holidaying, offer tips and advice on flying with a wheelchair, getting around foreign countries, and what they look for in accessible accommodation, as well as what they enjoy most about travelling. They are joined by our host Becca, who lives with SMA.
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Episode 4 - The impact of being a carer and receiving care
In our latest Muscles Matter episode we explore the emotional impact of care, how it affects relationships, setting healthy boundaries, and when it might be time to bring in paid carers.Kerry, mum to twins Oscar and Seb who both live with FSHD, and Lauren who lives with SMA, share their experiences of care from both sides: being a carer and being cared for. They are joined by our host Becca, who lives with SMA.
About The Muscular Dystrophy UK: Muscles Matter Podcast
A podcast for people living with a muscle wasting and weakening condition, their family and carers. Themes span from health and wellbeing, the latest research, tips and advice on day to day living with a muscle wasting condition, and inspirational community stories.
Listen to The Muscular Dystrophy UK: Muscles Matter Podcast, Working Hard with Grace Beverley and many other podcasts from around the world with the radio.net app
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