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The Muscular Dystrophy UK: Muscles Matter Podcast

Muscular Dystrophy UK
The Muscular Dystrophy UK: Muscles Matter Podcast
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4 of 4
  • Episode 4 - The impact of being a carer and receiving care
    In our latest Muscles Matter episode we explore the emotional impact of care, how it affects relationships, setting healthy boundaries, and when it might be time to bring in paid carers.Kerry, mum to twins Oscar and Seb who both live with FSHD, and Lauren who lives with SMA, share their experiences of care from both sides: being a carer and being cared for. They are joined by our host Becca, who lives with SMA.
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  • Episode 3 - An honest discussion about the mental health impact of living with a muscle wasting condition
    Our latest Muscles Matter podcast episode focuses on mental wellbeing. Becca, Muscular Dystrophy UK Stories Officer, chats with Louise Halling, a counsellor and psychotherapist, and Joe Logue, a writer and travel disability expert – who all live with a muscle wasting condition. They share an honest and open discussion in which they talk about the mental health challenges each have faced, and tips on how they’ve worked through these. Louise also brings in her wider experience of running therapy groups for people living with a muscle wasting condition, and Joe on how having a creative outlet has helped him manage his emotions.The mental health impact of living with a condition is often an afterthought in advice on how to manage a disability, but this episode brings it to the forefront.This episode discusses sensitive subject matter, including [suicide & mental health issues] 
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  • Episode 2 – Challenges, adaptations, and employment tips living with a muscle wasting condition
    In our second Muscles Matter podcast episode, we discuss all things employment. Jack, who runs our Employability Helpline, hosts this month's chat with guests, Konstantina and Diya. They share their own challenges of employment with a muscle wasting condition, adaptions in the workplace that make their jobs easier, and tips they have for others wanting to get into employment.
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    36:01
  • Episode 1 - Top daily challenges of living with a muscle wasting condition
    In this first episode, host Martin Hywood and guests Chloe Docker and Jed Thirkettle, all of whom live with a muscle wasting condition, have a lively discussion about the challenges of daily life living with a condition. Themes include travel and accessibility, the uncertainty of a changing condition, and relationships. 
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    31:50

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About The Muscular Dystrophy UK: Muscles Matter Podcast

A podcast for people living with a muscle wasting and weakening condition, their family and carers. Themes span from health and wellbeing, the latest research, tips and advice on day to day living with a muscle wasting condition, and inspirational community stories.
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