27: Carys Anderson: Waiting Years for A Very Rare Diagnosis
This week Carys Anderson is my guest, talking about her nearly 6 year old daughter Seleh who has an extremely rare genetic condition called Tessadori Bicknell Van Haaften syndrome. We discuss the difficulty of finding holidays that can cater for both physical disabilities and complex sensory needs, the difficulties of waiting so long for a diagnosis and how isolating that was, the benefits of therapy as a parent and Carys has some brilliant advice about allowing time for yourself time as well as for your child.
 The charities Carys found helpful are:
SWAN https://geneticalliance.org.uk/support-and-information/swan-uk-syndromes-without-a-name/
Rare Disease UK https://geneticalliance.org.uk/campaigns-and-research/rare-disease-uk/
 Tags: SEN parenting, SEND, additional needs
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26: Zynab Al Bahrani: Parenting 2 Autistic Children
In this episode I’m joined by Zynab Al Bahrani to chat about her 2 boys Yaseen and Saleem who both have autism. We talk about how it feels getting a diagnosis with your second child, the many things that can trigger you as a parent, how to cope with regression, and the importance of understanding sensory processing.
 You can find Zynab on Instagram @chapter.thirty.five and @happychattersdeveloplanguage and online at www.chapterthirtyfive.com
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25: Charlie Pettit: Down Syndrome & Outdated Abortion Laws
Charlie Pettit joins me for this episode to talk about her daughter Easter who has Down syndrome and well as a brain condition. We discuss comparison with typical children, letting go of control and how hard that can be, and the importance of being able to connect with people in similar situations. We also talk about the abortion laws concerning Down syndrome (and other conditions) meaning you can legally terminate your pregnancy right up until the end and why it’s so important for that to change.
 You can find Charlie on Instagram @a_little_extra_with_easter
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24: Kirsty Bailey: Autism, Donald Trump & Paracetemol
This week I’m joined by certified parent coach Kirsty Bailey to discuss her journey of parenting her son Tommy who has autism. Kirsty specialises in neurodiversity and we take a deep dive into communication, in particular Gestalt language processing. Kirsty also gives her take on the controversial comments made by Donald Trump regarding autism and paracetamol.Â
You can find Kirsty on TikTok & Instagram @mammaandtommy
Tags: speech and language, sensory integration, global development delay
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23: Laura Wallace: Understanding Cerebral Palsy
Laura Wallace joins me for this episode to chat about her son Ted who has cerebral palsy. We discuss the various ways that affects Ted and the day to day changes she has to make to accommodate his needs. We talk about the worry of him starting school and how he’ll cope, the guilt she felt when receiving Ted’s diagnosis and her struggles to get health professionals to listen to her in the beginning.
The charities Laura talks about in this episode are:
https://leosneonatal.org/
https://contact.org.uk/
Tags: SEN parenting, parenting podcast
The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. It's a place to share the joys and challenges of raising children with extra needs, with raw, honest conversations, designed to make you feel seen and heard on a journey none of us expected to be on.
UK