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FTD - Navigating The Cr*p

Beth Jones
FTD - Navigating The Cr*p
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  • Two Parents. One Diagnosis. Endless Love - Kirsty’s Story.
    In this deeply emotional episode, Beth sits down with close friend Kirsty Roebuck, who has faced the unimaginable - both of her parents were diagnosed with vascular dementia within 18 months of each other.Kirsty opens up about the first signs that something wasn’t right with her dad and the grief of slowly losing both parents in different ways to the same disease. She talks with heartbreaking honesty about denial, anger, guilt and the heavy responsibility that falls on families in caring roles.From navigating care systems, to handling aggressive behaviour, to coping with anticipatory grief and the emotional toll of becoming “the parent” to your parents, this is a story that so many will sadly recognise.But this episode is also full of love - love that continues even when dementia takes so much away.If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.To learn more about dementia research and how you can get involved, email [email protected] Hosted on Acast. See acast.com/privacy for more information.
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  • Supporting Children and Young People affected by Dementia with Admiral Nurse, Hannah Gardner
    This week, Beth is joined by Hannah Gardner, a Consultant Admiral Nurse for Children and Young People at Dementia UK.Hannah works directly with families affected by dementia, helping children and young carers understand the condition and find the support they need.Drawing from her own lived experience of having a mum with young-onset dementia, Hannah shares how her personal journey shaped her passion for supporting others.In this episode, she and Beth explore how dementia impacts the whole family, how to talk to children about it and why recognising and supporting young carers is so vital.If you’d like to connect with Dementia UK or access support, you can call the Dementia UK Admiral Nurse Helpline on 0800 888 6678.To learn more about dementia research and how you can get involved, email [email protected]. Hosted on Acast. See acast.com/privacy for more information.
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  • Navigating Dementia Care: Stacey’s story
    This week, Beth is joined by Stacey Markle, who shares her powerful and deeply personal story of navigating dementia as an only child after the sudden loss of her father. When her mum began showing signs of cognitive decline, Stacey became her primary caregiver, managing everything from diagnosis to daily care, and later navigating the complexities of long-term care in the US system.Over the past ten years, Stacey has gained invaluable knowledge about dementia care, legal planning and the realities of caregiving. Through her Instagram page, @navigatingdementiacare, she now shares practical advice, candid reflections and support for others going through the same journey, helping caregivers feel less alone.If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.To learn more about dementia research and how you can get involved, email [email protected] Hosted on Acast. See acast.com/privacy for more information.
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  • Practical advice from Dr Sarah Straughan - The Dementia Psychologist
    This week, Beth is joined by Dr Sarah Straughan, a Consultant Clinical Psychologist and dementia specialist. Sarah works closely with families and carers, helping them to navigate the often overwhelming challenges that come with dementia. If you’d like to connect with Sarah, you can follow her on Instagram @the_dementia_psychologist, where she shares practical advice, resources, and works to bust common dementia myths through her professional experience.If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.To learn more about dementia research and how you can get involved, email [email protected]. Hosted on Acast. See acast.com/privacy for more information.
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  • Dementia isn’t reserved for the elderly: Lukas’s story
    Beth is back for Series 2 of the podcast and this time she’s been sitting down to talk to other people who’ve found their lives being affected by dementia, in whatever way, to chat about their experiences and to try to learn as much as possible about this illness… This week she is joined by Lukas Olszewski whose ex-partner was diagnosed with Frontotemporal Dementia at just 36.Head over to remember-project.com to learn more about Lukas’s story, watch the trailer, and read the complete story behind the film. If you’d like to book Lukas for a screening event, you can get in touch directly by emailing [email protected] If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.If you’d like to learn more about dementia, the research happening right now, and how you can get involved, pop an email over to [email protected] Hosted on Acast. See acast.com/privacy for more information.
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About FTD - Navigating The Cr*p

As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65. For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone. This isn’t meant to be a shiny podcast that gives you all the answers. For a lot of us, the answers don’t exist - we’re just getting on the best we can. Hosted on Acast. See acast.com/privacy for more information.
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