2 Parkies in a Pod: a Parkinson's Podcast

• Special Episode: Is Parkinson's on the Rise?

  A new study published today reveals a worrying trend: there are now 166,000 people in the UK living with Parkinson’s but a further 21,000 are estimated to be undiagnosed.. and unsupported.The Parkinson's UK study, the largest of it's kind, also reveals more than a third (36%) were of working age when diagnosed.Separately the number of people with a more complex form of Parkinsonism (e.g. Lewy Body Dementia, MSA, PSP) has increased to 28,000.The study also finds stark differences in rates based on ethnicity.Even more concerning, in some parts of the country people are waiting up to five years to see a neurologist. The charity has called it a “Parkinson’s diagnosis crisis.”With someone in the UK diagnosed every 20 minutes, we ask: why are the numbers rising, what’s driving the crisis, and what needs to change?Join us as we dig into the data, with 3 experts from Parkinson’s UK and explore what this means for the Parkinson’s community — now and for the future.For more information:Parkinson's UK News Article:https://www.parkinsons.org.uk/news/thousands-are-living-parkinsons-undiagnosed-and-unsupported-our-new-research-findsRead the Parkinson's UK Research Blog:https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-what-do-we-knowParkinson's UK Statistics:https://www.parkinsons.org.uk/about-us/parkinsons-statisticsResearch Paper:https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mdc3.70368www.parkinsons.org.ukUK Helpline 0808 800 0303Join the Research Support Network:https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-research-support-networkhttps://www.parkinsons.org.uk/research/race-equality-researchJoin the Black, Asian, Arab and Mixed Heritage Support Group:https://localsupport.parkinsons.org.uk/activity/black-asian-arab-and-mixed-heritage-support-group-meetingListen to Will I Die from Parkinson's:https://www.2parkiesinapod.com/podcast/episode/1e8a6b26/will-i-die-from-parkinsonshttps://ourfuturehealth.org.uk/

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• Call the Parkinson's Nurse

  In this episode, we’re joined by specialist Parkinson’s nurse Becky Heslop, who recently starred in a film highlighting the vital role nurses play in supporting people living with Parkinson’s. Becky talks us through what a Parkinson’s nurse actually does, from being a key part of your care package, to offering advice, reassurance, and hands-on treatments. We hear about some of the more practical – and sometimes challenging – aspects of her work, including giving Botox injections and helping people manage the Produodopa pump. Please consider donating to the Nurse appeal at:https://www.parkinsons.org.uk/donate/donate-great-care

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• Episode 50 - The Best Bits!

  We’ve hit a huge milestone – 50 episodes, and 2 Parkies in a Pod is celebrating in style!In this special edition, we take you back through some of our most memorable moments:✨ The inspiring Matt Eagles, who’s been living with Parkinson’s for more than 50 years, shares how he stays positive.✨ Professor Tom Foltynie answers your questions at Queen Square and explains how to prepare for your consultation.✨ From Episode 20, Canadian broadcaster Harry Forestell tells us what it was like to meet Michael J Fox.✨ Dementia expert Rimona Weil on why she fell in love with neuroscience.✨ The Top 10 symptoms✨ Plus - The moments when things didn’t go quite to plan – including that fit of the giggles!

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• You Can't Hide Your Parkinson's Forever

  This week on 2 Parkies in a Pod, we’re joined by television producer and editor Rob Burley. Rob has worked with some of the biggest names in political journalism – from Jeremy Paxman to Andrew Marr, Laura Kuenssberg to Emily Maitlis.Diagnosed with Parkinson’s in 2021, Rob talks openly about his journey and the challenges of balancing a demanding career with the condition. We also discuss his fascinating book, Why Is This Lying Bastard Lying to Me?, which explores the history of political interviewing and shines a light on how the toughest questions shape public life.Send us your voice notes at [email protected]'s Blog:https://unherd.com/2025/07/you-cant-hide-parkinsons-forever/Rob's Book:https://open.spotify.com/show/7KLaSpzKqS5x9fKKgLFMQj?si=ef8c8e47cf804fa7&nd=1&dlsi=80ebdbbb704d4d14https://www.amazon.co.uk/Why-This-Lying-Bastard-Searching/dp/0008542481Balls to Parkinson's Bike Ride:https://ballstoparkinsons.co.uk/Parkinson's UK Brain Bank:https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bankParkinson's UK Walk for Parkinson's 7th Sept :https://events.parkinsons.org.uk/event/walk-parkinsons-battersea-park/homeWalk to Cure Parkinson's 28th Sept:https://cureparkinsons.org.uk/get-involved/walk-to-cure/Par-Con 2025 Parkinson's UK Community Convention 24/25 Oct:https://www.parkinsons.org.uk/get-involved/par-conPlease rate, review & subscribe if you enjoy the show.

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• 2 Parkies at the Brain Bank

  Dave and Kuhan take you behind the scenes of the Parkinson’s UK Brain Bank at Imperial College London. They witness an incredible brain dissection led by a world-class neuropathologist — an unforgettable experience.Have you ever wondered how you can make a real difference to Parkinson’s research? Find out how you can donate your brain to science and help unlock the mysteries of this condition.  https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bankhttp://imperial.ac.uk/[email protected] out if Kuhan’s DBS surgery has improved his tennis as the boys play their first post-surgery match….Par-Con 2025 the Parkinson’s UK community convention, is our free, 2-day event for the Parkinson's community. Join us in-person or online for talks, activities and to connect with others. https://www.parkinsons.org.uk/get-involved/par-conAMAZING THINGS Adam Roberts the author of The Amateur Gourmet has gone public about his Parkinson’s … Every Silver Lining Has a Cloud - by Adam Robertshttps://amateurgourmet.substack.com/p/every-silver-lining-has-a-cloudJimmy Choi American Ninjahttps://www.facebook.com/share/v/1ALSbWFLiW/?mibextid=wwXIfrAnd we take a moment to pay tribute to fellow Parkie and rock legend Ozzy Osbourne, whose honesty and grit continue to [email protected]

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