The Autism Mums Podcast

Another episode from the archives this week. We're returning to our episode where we dive into the unique challenges of raising a child with a PDA (Pathological Demand Avoidance) profile. We're sharing our personal stories, strategies, and reflections to help parents and caregivers better understand and support their children navigating PDA-related behaviours.
Key Takeaways
PDA is driven by anxiety and a need for control; traditional demands can trigger refusal.
Offering controlled choices helps reduce pressure and gives children a sense of agency.
Visual schedules and plenty of preparation help ease transitions and reduce stress.
Managing your own calm and letting go of nonessential demands are important for low-demand parenting.
It’s okay to adjust family routines to what works for your child, even if it looks different from your original parenting ideals.
Misunderstandings from others can be painful but focusing on your child’s needs is what matters most.

Mentioned in This Episode
PDA Society
Dr. Naomi Fisher webinars and resources
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We're returning to the archives again this week to our episode all about EHCP's. We’re talking about the journey to getting an EHCP - what it is, why it matters, and what the process looked like for our families.
We’ll share the lessons we learned along the way with the hope that it helps you navigate the process and feel a little more prepared.
Key Takeaways
An EHCP can provide vital, legally binding support
You don't need a formal diagnosis to apply for an EHCP
Schools may not always initiate an EHCP request. If they don't parents can.
Timelines and deadlines are crucial - keep a track of key dates.
Support groups, SENDIASS and organisations like IPSEA can provide guidance and practical help.
The right provision can make a huge difference to your child's wellbeing.
Mentioned in This Episode
SENDIASS (Special Educational Needs and Disability Information Advice and Support Services)
IPSEA (Independent Provider of Special Education Advice) — ipsea.org.uk
EarlyBird course (National Autistic Society support programme for parents)
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In this week’s encore episode of The Autism Mums Podcast, Victoria reveals the emotional journey of her son’s autism diagnosis. She reflects on the early signs that were often misunderstood and the battles faced in educational settings, culminating in the significant moment of receiving an official diagnosis. As one of our most popular episodes, we wanted to share this again as there are so many on this path to diagnosis.
Key Takeaways
Autism signs can often be masked or misunderstood, especially in young children.
Building a support network of other parents is crucial.
Professionals may miss signs too, trusting your instincts matters.
The diagnosis process can feel long and isolating, but community support makes a difference.
Receiving a diagnosis is often a moment of both relief and grief and that's OK.
Mentioned in This Episode
The Early Birds Course (National Autistic Society)
ASDivas and Dudes Support Group
The Girl with the Curly Hair by Alis Rowe
The Complete Guide to Asperger’s Syndrome by Tony Attwood
TADDS Outreach Team
Total Children's Therapy
ADOS-2 Autism Diagnostic Observation Schedule
CAMHS (Child and Adolescent Mental Health Services)
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In this week’s encore episode of The Autism Mums Podcast, we are revisiting our look into the journey toward an autism diagnosis. Natalie opens up about her experiences with her son, reflecting on the subtle early signs and the drawn-out process of seeking support.
Key Takeaways
Early signs aren't always obvious: It's common to realize things only in hindsight.
Not all settings impact children the same way: Different environments can highlight or mask challenges.
The path to diagnosis is often long: Waiting times can be frustrating, but support exists even before official diagnoses.
Grief is a natural part of acceptance: It's okay to mourn the loss of expectations while embracing a new, beautiful reality.
Practical support makes a difference: Courses like EarlyBirds offer real-world tools tailored for neurodivergent children.
Mentioned in This Episode
EarlyBirds Programme by the National Autistic Society
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In this week’s encore episode of The Autism Mums Podcast, join us as we navigate the complex landscape of anxiety in autistic children. We share our personal insights and experiences, exploring the diverse ways anxiety can manifest, including meltdowns, shutdowns, and sensory overloads.
Whether you're early on in your autism journey or navigating school-age challenges, this episode offers reassurance, relatable stories, and real-world strategies that can make a difference.
Key Takeaways
Anxiety presents differently in autistic children: It might show up as shutdowns, meltdowns, repetitive questions, anger, or even physical symptoms like tummy aches.
Avoidance can be common: Children may retreat to their rooms or refuse to go places when overwhelmed.
Sensory overload can be a major trigger: Noisy environments, bright lights, and even scratchy clothing can heighten anxiety.
Routine changes, even positive ones, can be stressful: Children may want changes, but still struggle when they occur.
Social unpredictability can add pressure: Not knowing who will be present or what will happen in social settings can create discomfort.
Masking and perfectionism can lead to burnout and chronic anxiety.
Support strategies matter: Ear defenders, visual timetables, sensory tools, role play, and validating feelings can help.
Validation and patience are key: Simply saying 'I hear you' can help children feel safe and understood.
Mentioned in This Episode
Mindfulness sessions – Supportive techniques that help children become aware of how anxiety feels in their bodies.
https://www.mindful.org/mindfulness-for-kids/
Visual timetables and planners – Visual supports that help prepare autistic children for transitions and daily routines.
Example resources: Twinkl Visual Timetables
Noise-cancelling headphones and sunglasses
Edz Kidz Ear Defenders
Breathing exercises for children
https://copingskillsforkids.com/deep-breathing-exercises-for-kids
BBC Documentary – Inside Our Autistic Minds by Chris Packham
Watch here: BBC iPlayer – Inside Our Autistic Minds
Harry Potter Studio Tour (UK)
Mentioned as an example of a venue with quiet spaces and autism-friendly accommodations.
Accessibility info https://www.wbstudiotour.co.uk/additional-needs/
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